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Winner Winner!

Just announced the bidding winner, Matthew J Walters, for the signed Moon poster, from my talented, hard working husbaaaand’s film, Moon:

via: http://blog.manmademovies.co.uk/2014/10/19/signed-moon-poster-auction-for-rodene-jones-tower-cancer-foundation-chartity/

…brings us up to $734.00 

I’m so grateful to be able to help raise awareness, and help where I can. Its important to me that we are more hands-on in regards to cancer support efforts. Whenever and wherever we can, we certainly will. 🙂

Please feel free to share our fundraiser site: https://www.crowdrise.com/touchupyourlovedones/

…stay close, we’ll be auctioning off more fun surprises soon.

Peace, love and good health.

Rodene Jones

“Gratitude unlocks the fullness of life. It turns what we have into enough, and more. It turns denial into acceptance, chaos to order, confusion to clarity. It can turn a meal into a feast, a house into a home, a stranger into a friend.”

I’ve Been Meaning To Update…

..but keep stalling. I don’t know what it is, but here’s that link from last years PSA my buddy and I did. Yes, unfortunately it is STILL relative, because we DON’T have a cure for cancer yet. 

From the Popsugar website: (  http://www.popsugar.com/Kat-Dennings-Interview-Rodene-Jones-Video-32030641  )

Two Broke Girls star Kat Dennings and her best friend, photographer Rodene Jones, first met as teenagers. Like any close, longtime friends, the two have weathered their share of successes and setbacks together in the years since — but nothing prepared them for Rodene’s breast-cancer diagnosis at age 31. After Rodene’s fiancé noticed a lump underneath her breast, Rodene not only learned she had triple-negative cancer, but she also tested positive for BRCA1; that gene greatly increases the likelihood of contracting breast and ovarian cancers. Rodene quickly began a grueling treatment process that would transform not only her own life but the lives of the people who love her.

UPDATE: It’s been a year since we first brought you Kat and Rodene’s story on  In Her World, and we’re happy to share that Rodene’s most recent scans indicate that her cancer treatment — which included six rounds of chemo, 37 rounds of radiation, and a double mastectomy — worked. Even so, she’s cautious about her health and awaiting a new round of scans at the end of the year, which should provide her and her doctors with a better idea of her status. “The form of celebration I practice is making every day I’m alive and able awesome,” Rodene tells us. She and her husband, Duncan Jones, are looking forward to trying for a baby once she gets a thumbs-up from her doctors and are teaming up with the Tower Cancer Research Foundation on a campaign called Touch Up Your Loved Ones, inspired by their own experience. The couple is now back in LA after spending nine months in Vancouver, British Columbia, Canada, on the set of the movie Warcraft. Duncan directed the film and Rodene served as the movie’s archivist photographer. “I was so grateful to have no time to sit and worry about all of the aches and pains,” she says. “Being able to have the strength to carry my camera around, stay on my feet, and push myself out there again has been helping my ‘new’ self.”

Brought to you by Ford Warriors in Pink. 

On Lindsay: Diane von Furstenberg

https://twitter.com/POPSUGAR/status/522126149258715136

http://www.crowdrise.com/touchupyourlovedones

Lots has happened since my diagnosis, lots of living has been going on 🙂 . My two years is coming up, and I’m hoping to get only good news after my new set of scans. Til then, I’ll be living “as if,” which includes trying to raise awareness so others don’t ever have to go through this nasty disease.

Also, my husband and I went to the doctors and got our flu shots. Please be a responsible person, visit your doctors office, or local pharmacy, get jabbed, bring everyone YOU KNOW with you. If you don’t want to donate, or help raise awareness, just get the dang flu shot. 

Taken from Lisa Adams’ blog: “According to the CDC the flu and complications from it kill almost as many people each year as breast cancer. Let that sink in. The flu kills about 36,000 people each year. Metastatic breast cancer kills approximately 40,000 people.” ( Visit Lisa Adams’ blog, she’ll tell you first hand about METASTATIC Breast Cancer, and also how you should get your flu shots. )

Metastatic Breast Cancer.

And as far as side effects from all the treatments and surgery, I’m alive, and yes I am experiencing random pains, aches, fatigue AND neuropathy. (I’ll get into more of my physical & mental health later, if it helps someone else out.)  But, I am able to push myself everyday, as far as stretching, walking longer distances, and normal people things.

Like dancing in Vancouver rain:

…and so she just danced her little heart away. ☺️ 🐋☔️☁️

A post shared by r o d e n e (@rodeneronquillo) on

My hair is slowly growing back, and so is my belly, something about BC treatment messes up your system, including your metabolism, or maybe it could be all of the DELICIOUS food we’ve been cooking. My 37 rounds of radiation did mess up the left side of my chest, so being able to stretch that side out has been difficult. I was able to swap out my rock hard expanders for soft, ziplock bag like saline implants. That surgery was way less stressful than the double mastectomy, but don’t get me wrong, I was still terrified. Though, knowing my husband would be waiting for me soon after keep what little peace I did have close in my heart. I didn’t take any painkillers, and couldn’t take the medical cannabis, so I just rode it out naturally, sleeping basically upright on a ton of pillows. I did have to take antibiotics for about 8 days to prevent any infections, which worked. Had over 120 stitches inside my chest, and felt gnarly pains here and there, but nothing that stayed long enough for me to panic. My right side is saggy, but I’m ALIVE, and am so happy. NO ROOM TO COMPLAIN. NONE. 

Well, that’s that, for now.

I’ve set up a new fundraiser, one that I, actually, we, will have a clearer idea of where the money will be going towards. Its a special place to me, and have supported me during and after treatment. So, please donate, support, share if and whenever you can, its important.

Okay, I’m done for now, thanks for reading. I hope you or anyone you love never have to deal with cancer, its a b*tch. Life is short, fragile, and dang precious, please take care of yours, as others are fighting harder just to live another day.

Peace & Love,

Rodene Jones

Best shared with friends. ☺️

A post shared by r o d e n e (@rodeneronquillo) on

More photos & videos found here: http://instagram.com/rodeneronquillo

Tips & Things.

When I got the cancer/brca1 diagnosis, I of course searched the web endlessly looking for “tips and tricks,” as I’ve always done for anything. (Tips and Tricks, remember that gaming magazine?!?) Hoping to find a handbook on how to get through this whole cancer “thing” or “prepare for death” (though my husband hates that I even thought that, its true, when I got diagnosed, I didn’t know,) ****cancer and its mysterious ****ing ways,” I didn’t know and kinda still don’t know what to expect. What I did find out was, there actually was a handbook, and an enormous amount of useful tips and tricks. I also noticed that there were way too many people with cancer, but comforted to know that many people have been “surviving” this horrible disease.

I asked a couple of friends who I’ve met through treatment to send me over some of their “quick tips” they found useful. One of them is still in treatment, the other is not, both diagnosed with ****ing breast cancer and have been very kind, lovely new friends throughout….I asked a couple of other people, but they took forever to get back to me, so if you all out there in the internet world, have any tips/advice for other people going through this, or for their loved ones, please share.

Yes, I’m actually asking for any useful tips/advice only, but not for people to tell me that chemotherapy, a double mastectomy, radiation, etc. are awful/horrible treatments. I understand that people, generally, have good intentions, but its strange how only those whom are not cancer patients are the ones quick to give definite treatment orders, i.e. YOU HAVE TO GO RAW, YOU HAVE TO EAT GARLIC ALL DAY, YOU NEED TO HAVE PEROXIDE INJECTIONS, YOU HAVE TO MOVE TO MEXICO, etc. There is definitely a balance between modern and natural medicine. Lecturing me on what I need to do, because the decisions “I already made were wrong,” is only going to make me run away from you, or blog about you to warn others. Its all so overwhelming, and I have to admit, the really good advice I’ve received were from people actually going and have gone through it. That’s not to say that other people haven’t been useful, but you know what I mean.

Hope you guys find this useful, I wanted to contribute some information that helped me, and give back the support that I have been given. We’re constantly taking from “the universe” but what are we giving back, what am I giving back? Hopefully I can give love, support and positivity..keeping the good energy ever flowing. 😉

Visit her blog here: http://dameazon.blogspot.com

Visit her blog here: http://dameazon.blogspot.com

 

Visit Sarah's Blog: http://sarboobs.wordpress.com

Visit Sarah’s Blog: http://sarboobs.wordpress.com

 

(Find her blog here: http://sarboobs.wordpress.com )

(Find her blog here: http://sarboobs.wordpress.com )

 

…here is what I came up with:

Rodene's Short List.(yes, I know its messy, if you have any questions, ask away)

Well, that’s entry two on this whole “cancer thing,” I don’t even know what to call it…but thing will do for now I guess. Hopefully someone out there has found this to be useful. Not sure what I’ll blog about next, maybe on something non-cancery.

Thank you again you guys/gals for being supportive and kind…I’m continually trying to do the same. 😉

Peace & Positivity,

Rodene Jones

P.S. Here are some images from the “handbook” that a nice someone had given to me before I started treatment. I haven’t gone through many of these kind of books, but this one was simple and not overwhelming.

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Man I Hate Cancer.

Checklist.

(bold words are clickable links)

What..in…the…F*** was that?

Something ruthless just tried to take my life away.

One minute I was baking kale, next thing I had breast cancer. Triple Negative Breast Cancer to be exact, Stage 2. I just finished 36 rounds of radiation, and before that: a double mastectomy with reconstruction, six rounds of chemotherapy (carboplatin-taxol) with neulasta injections & lupron as well, fertility treatments, a lumpectomy, a couple of biopsies & other necessary scans (MRI, Bone, PetCT, Brain, Blood, etc.etc..) and way too many blood draws and the many side effects from EVERY single thing (alopecia,  neuropathy, anemia etcetcetc) …OH, my first mammogram, and finding out I tested positive for the BRCA1 gene, which can be passed down to any future children I may have.

And that’s all not so bad compared to some of the other cancer patients I’ve met along the way, suffering from far more complicated and chronic disease. I can’t even think of them without feeling upset and angry…so ****ing angry that I can’t help. How can I help them? We’re all in this together right?  How can we help each other? We all just want to live…I hope I can figure out how to make myself useful to serve and support others dealing with cancer.

What I will do is continually be grateful for my life, SO GRATEFUL FOR MY NEW LIFE…though I’ll forever have to be monitored for anything unusual besides the normal unusual :), I hope to live long, old & grey with my incredible husband, future children, and become a great grandmother. That’s all. Is that too much to ask for? Yes I want to raise awareness, return the love and support that has been shared with me, but man oh man I’m going to live the cancer right out of my life….I’m going to fill up my life with SO much LOVE and stupid vegetables, there will simply be NO room for anything else, but GOODNESS. And maybe some bacon, grass fed, organic bacon.

I want to live to see the day when cancer will be a thing of the past.

Its all so unfair. Ya know, my treatment center alone was always so packed and full of cancer patients, its horrible. Absolutely curse word horrible.  I don’t even know what to say really…I was going to blog during treatment, but decided not to. Then I thought I should because it might be helpful for me, and for others, then I didn’t. I still don’t know what use of this blogging about cancer from my point of view would be, I’m not brave or have any insight to prevent this from happening to anyone else. I could tell you all day to go in for your check ups, but at the end of the day its all on whatever you want to do. I’ve reminded my family and friends, and they still haven’t bothered to get checked up.

If you have never walked through a cancer treatment center, for adults and or children, you should….cancer is real and closer than I ever thought it’d be. Donate, be aware of your body, and most importantly, don’t be judgmental, you never know what someone is going through, surround yourself with love and good people. I don’t know that I can sum up how I’m feeling, but a good piece of advice I was given from a 17 year breast cancer survivor is, live as if.

xo,

Rodene Jones

P.S. I GOT MARRIED! 

My everything.

My everything.

P.P.S. Some women who I’ve met online, in REAL LIFE :), or who I wish I could’ve met, women I respect dealing with their own personal fight with cancer:

http://lisabadams.com

http://sarboobs.wordpress.com

http://cancerisstupid.wordpress.com

http://dameazon.blogspot.com

http://www.youtube.com/watch?v=e1SI3V1Ar20 (rest in peace)

http://www.youtube.com/watch?v=SQ8-f7F9BdI&oref=http%3A%2F%2Fwww.youtube.com%2Fwatch%3Fv%3DSQ8-f7F9BdI&has_verified=1

When I can think of more, I will definitely share…or if you can think of others, please share.

Special thank yous to everyone who have been so very supportive, all of the kind words, generous donations, and loving vibes…making this whole “thing” brighter and less scary for my husband and I. I hope you all know how much all of it means to us Joneses.

Part of me hopes to never see another Rohawk (before chemo, I was advised to shave my hair off before it starts to fall off, less traumatic & messy, so my husband decided to show his support by letting me shave his head and dye his Rohawk pink, what a sweet husband) ever again, but I also like that it helps bring up the conversation of cancer and the importance of early detection. 🙂  Thank you husband, UnkleRupert,TheCheeseyGaming, Laughing Banshee…forever appreciate the support.

My love.

One of a kind…and all mine.

Nice guy.

The kindness of strangers is something else.

Thank you.

Amazing.

Supportive, kind man.

What a face.

Already a heart of gold.

Neil raised a good one.

The Miltons, so sweet.

Beautiful.

Chanceforhope.com

Chanceforhope.com

The Joneses.

Love is real.

*I’m really sensitive, and it took me a lot to get this blog entry up, so please don’t be negative. I’m not trying to be a professional writer or am I trying to prove anything. I do want to be helpful and share what I’ve experienced and am experiencing to help at least one person. Truly hoping I can share something that can help someone else with this blog, maybe even if that only person is me. 😛 I personally found it very useful reading through other patient’s blogs before and during treatment.

SO, I am not open to criticism, bullying or anything of the like. Just please move on without causing anything but love, smiles and kindness. 

Thanks for being a part of my recovery….

Kale Chips…..HA.

Not to be confused with curly mustard…..don’t put two leafy greens that look the same next to each other grocery employees, especially when one is extremely SPICY and NOT Kale. You know, customers might mistake the two, and accidentally use curly mustard in their attempt at a healthy smoothie and accidentally burn their throat. JUST saying. I’ve heard this kind of stuff happens.

Okay, so maaaaaybe I’m the only goof ball with that kind of luck. I swear I looked at the labels…ugh.

Point being, I’m trying to find a non bloaty way to incorporate Kale in our daily diets. First, I tried it raw, n’ every single time, bloat. Then, tried frying it, steaming it, etc…nothing but pain. Pain in the stomach, chest, and butt. Totally turned off after feeling like I was going to have a heart attack and baby all at the same time.

Been months since I’ve had it, and recently I saw bags of the stuff in stores as, “kale chips.” I was interested until I saw that they were priced at $7.00, yowza, too expensive for something that may just make me feel like a bloated dog again. So, decided to make some at home.

All I needed to buy for this recipe was the bunch of kale, had everything else, so already I was ahead of the game. I hate it when people say that, “ahead of the game, or game changer.” Whatever. So, I made the dang kale chips, and they were tasty. Doubt they still have the same nutrients being cooked in this manner, but they’re probably not a bad snack option. It’d be great to serve to friends & family, maybe over a salad or soup. Glad I found a way to eat the leafy greens, I still feel a tad bit queazy when I have ’em but not nearly as bad as every other way. They were really good I tell you, between the fiancé and I, they were gone faster than I thought they would be.

A win. Thumbs up to you kale chips…definitely baking you again.

xo,

Rodene

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